The PSC Partners Patient Registry is open to everyone with PSC, wherever you are in the world.

Parents and caregivers can join on behalf of their children.

​Any information you share is de-identified before sharing with researchers. No patient-identifying data ever leaves the Registry.

Join the Registry to...​

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• Complete surveys that confidentially capture your experiences and address key questions in PSC research;

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• Document and track your medical history with PSC, including treatments, symptoms, and healthcare providers;

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• Elect to receive information about participating in research and clinical trials. You will be notified if you qualify for a study and can choose to contact the study team.​