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Tutorials & Instructional Videos

Browse the links below for more information on the Patient Registry and how to access and use the Registry!

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Videos and written tutorials on how to join the registry and explore de-identified patient data are temporarily unavailable as they are being updated for the new Registry platform. These will be available soon.

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Future tutorials will include:

  • how to upload your medical record

  • how to see and print or download your survey responses

  • how to explore the physician map and add your specialist to the map
     

Please send a note to registrycoordinator@pscpartners.org for suggestions of tutorials you'd find helpful.

Registry Tutorials

Click on each link below to access a video and/or written tutorial.​

These tutorials contain instructions for creating a new Registry Account. Two account types are available: Patient Accounts, and Caregiver Accounts, which are for users registering on behalf of a living or deceased PSC patient.

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Other Instructional Videos

Launch Video

(2006) 3 min video explaining the need for a Patient Registry

Importance of Patient Registry

(2022) 3 min video on the importance of the Patient Registry. From a ROADMAP webinar.

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