News and Announcements

Living with PSC, Leading with Hope You might notice this issue of The Viaduct  has a new look, in more ways than one! As your new...

In 2024, the Registry team sat down with the leadership at North Star Review Board, which serves as the independent review board (IRB)...

In May 2025, the annual Digestive Disease Week (DDW) conference was held in San Diego,  California. This conference brings together...

The Precision BTC Network, a European-focused international coalition to improve care of biliary tract cancer (also referred to as CCA or...

On September 8, 2025, Mirum Pharmaceuticals Inc. issued a press release announcing enrollment completion for the Phase 2b VISTAS study....

Dear PSC Registry Community, It is time for me to leave my position of Director of the PSC Partners Patient Registry. As founder of the...

The Registry team is excited to announce that a new Symptom Assessment Survey is now available in the Registry. Developed by the PSC...

In May 2025, the European Association for Study of the Liver (EASL) hosted its annual congress in Amsterdam, Netherlands. Late-breaking...

Issue 8 - Spring 2025 In this issue: From the Registry Director • Cholangiocarcinoma (CCA) Survey • WIND-PSC Enrolling Patients •...

More participants are needed for the following drug trials to move forward. Please reach out to the Brigham and Women’s researchers...

Members of the WIND-PSC project, including the steering committee, staff, and investigators from several of the sites currently enrolling...

Quotes from interviews of patients living with PSC describing their fatigue, presented as a poster at AASLD's The Liver Meeting 2024 ....

Today, March 27, 2025, Chemomab Therapeutics issued a press release announcing results from the Open Label Extension (OLE) section of the...

A new survey outside the Registry that focuses on understanding and improving the care of people living with PSC is now available. Every...

On February 19, 2025, Chemomab Therapeutics issued a press release announcing plans for a Phase 3 clinical trial for the treatment of PSC....

A new survey on PSC and diet is available through the European Reference Network (ERN) and open to people living with PSC around the...

Issue 7 - Winter 2025 In this issue: From the Registry Director • A New Era • Your Data in Publication - 2024 • Clinical Trial News •...

This past July, the American Liver Foundation (ALF) announced the opening of a new patient registry. You may be wondering how it compares...

PSC Partners opened the Patient Registry for enrollment 10 years ago. However, the process of building a Registry began several years...

In November, a PSC Partners contingent, representing both the U.S. and Canada, attended the 8th PSC Forum and the American Association...