PSC Flare or Cholangitis Attack Patient Survey
A new survey is available in the Registry: the PSC Flare or Cholangitis Attack Patient Survey . Why take a survey about PSC...
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News and Announcements
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- Sep 9
Winners of the 10th Anniversary Celebration Drawing
A huge THANK YOU! to everyone who has kept the PSC Partners Patient Registry an active and constantly growing beacon of the patient voice...
- Jul 29
Chemomab Announces CM-101 Phase 2 SPRING Trial Results
Three Recent Announcements from: Pliant, NGM, and Chemomab PSC Partners is encouraged by the initial positive data from the CM-101 Phase...
- Jul 22
Positive Update on Pliant’s INTEGRIS-PSC Phase 2a Trial
On July 15, 2024, Pliant Therapeutics announced positive results from their Phase 2a INTEGRIS-PSC trial for bexotegrast in treatment of...
- Jun 24
New Article on an Adaptive Treatment Strategy for Use of Vancomycin in PSC
The repurposing of approved medications with potential new efficacy in rare diseases is challenging, as these medications are unlikely to...
- Jun 21
Expanded Inclusion Criteria for Mirum’s VISTAS PSC Study for Pruritus Treatment
The following is a message from Mirum Pharmaceuticals regarding their VISTAS study for volixibat, a possible new treatment for...
- Mar 18
A New Era for the PSC Partners Registry Community
Dear Registry Participants (Current and Future), This year is the 10th anniversary of the PSC Partners Patient Registry, a perfect time...
- Sep 30, 2023
Preliminary Results from INTEGRIS-PSC Phase 2a Clinical Trial
Exciting news about the Pliant Therapeutics PSC clinical trial preliminary results from their global INTEGRIS-PSC Phase 2a trial for...
- Jul 14, 2023
Health Equity in PSC Survey
Health equity is the state in which everyone has a fair and just opportunity to attain their highest level of health*. The mission of PSC...
- Jun 30, 2023
The VIADUCT Newsletter Issue 6
Issue 6 - June 2023 In this issue: From the Registry Director • New CZI Grant Awarded to PSC Partners • Patient Focus Groups Provide...
- Jun 24, 2023
PRIMIS (Phase 3 Study of Cilofexor) News from EASL Congress 2023
News from the EASLCongress 2023 meeting in Vienna From the "late-breaking" abstract session on June 24, 2023, results of the pre-planned...
- Feb 27, 2023
Oral Vancomycin and Insurance Coverage
Survey Results: Oral Vancomycin and Insurance Coverage PSC Partners received a request from patients to survey the PSC patient community...
- Oct 30, 2022
The VIADUCT Newsletter Issue 5
Issue 5 - October 2022 Welcome! In this issue: • From the Registry Director • The Clinical Trial Landscape in PSC • Current International...
- Sep 28, 2022
PRIMIS (Phase 3 Study of Cilofexor) News
Statement From Gilead Sciences on September 27, 2022 Early Termination of Gilead-Sponsored Study GS-US-428-4194: A Phase 3, Randomized,...
- May 25, 2022
The VIADUCT Newsletter Issue 4
In this issue: • From the Registry Director • Mini-PFDDs • Patient Registry Video Tour • Help Us Grow & Diversify the Registry! • PSC...
- Dec 1, 2021
The VIADUCT Newsletter Issue 3
Welcome! In this issue: • From the Registry Director • Profile: Dr. Frank Anania of the FDA • Your Registry Data at Work • PSC Partners...
- Aug 24, 2021
The VIADUCT Newsletter Issue 2
Dear Registry Participant, Thank you for your participation in the PSC Partners Patient Registry. We are happy to bring the second issue...
- Mar 1, 2021
Proof of Concept Phase 2 Trial of IMU-838 with Early Positive Results
A proof-of-concept Phase 2 trial conducted by Mayo Clinic and sponsored by Immunic has shown very early positive results. We hope that...
- Jan 28, 2021
Clinical Trials Updated: PLN 74809 and Volixibat
The clinical trials resources page has been updated on 1/27/21 to reflect two clinical trials currently recruiting. PLN 74809: Phase 2a...
- Nov 13, 2020
Successful registry appeal garners strong support
On October 6, 2020, the PSC Partners Registry team sent out an email alert regarding a Harvard Brigham and Women’s Hospital nutrition...
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