News and Announcements

Health equity is the state in which everyone has a fair and just opportunity to attain their highest level of health*. The mission of PSC...

Issue 6 - June 2023 In this issue: From the Registry Director • New CZI Grant Awarded to PSC Partners • Patient Focus Groups Provide Feedback • Oral Vancomycin & Insurance Coverage • European Clinicians Survey Results • Call to Action: What is the Registry Not Asking? • Highlights: Clinical Trials & Studies From the Registry Director Dear Registry Participants, PSC Partners and the PSC Partners Patient Registry are moving at rapid speed through involvement in large internatio

News from the EASLCongress 2023 meeting in Vienna From the "late-breaking" abstract session on June 24, 2023, results of the pre-planned...

Survey Results: Oral Vancomycin and Insurance Coverage PSC Partners received a request from patients to survey the PSC patient community...

Issue 5 - October 2022 Welcome! In this issue: • From the Registry Director • The Clinical Trial Landscape in PSC • Current International PSC Research • The ChiLDRen Study • Gilead's PRIMUS Trial Terminated • Patient-friendly Clinical Trial Design • Highlights of the 2022 International Liver Congress • Meet PSCP's Ruth-Anne Pai, PhD • Clinical Trials Are Recruiting From the Registry Director Dear Registry Participants, Whether you are a person living with PSC, or the relat