News and Announcements

In 2024, the Registry team recently sat down with the leadership at North Star Review Board, who serves as the independent review board...

In May 2025, the annual Digestive Disease Week (DDW) conference was held in San Diego,  California. This conference brings together...

The Precision BTC Network, a European-focused international coalition to improve care of biliary tract cancer (also referred to as CCA or...

On September 8, 2025, Mirum Pharmaceuticals, Inc. issued a press release announcing enrollment completion for the Phase 2b VISTAS study....

Dear PSC Registry Community, It is time for me to leave my position of Director of the PSC Partners Patient Registry. As founder of the...