A new survey outside the Registry that focuses on understanding and improving the care of people living with PSC is now available. Every survey fills a different function, and this one, developed by two researchers at University of Miami, serves to build a comprehensive understanding of PSC care, including quality of care and access to care.
Please visit the survey website and complete the survey today! Your input is incredibly valuable.
Below is a message from the study investigators:
Dear Registry Participants,
Welcome to our survey! We're working to make healthcare better for people living with Primary Sclerosing Cholangitis (PSC), and your input is super important. We want to know about your experiences and thoughts to find ways to improve patient care. Your contribution means a lot to us.
The survey includes simple and clear questions, and it should only take around 20-25 minutes. Your dedication to this research can really make a difference for people dealing with PSC, and we're excited about the positive impact we can make together.
Best,
Cynthia Levy, MD
Adrielly Martins, FMD
Shiff Center for Liver Diseases
University of Miami
If you have any questions or concerns regarding this survey, please contact Cynthia Levy or Adrielly Martins: (phone: 305-302-2474 or email: axm8717@med.miami.edu)