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Presentation by Rachel Gomel, Registry Director at the PSC Forum April 10, 2018 in Paris, France, documenting the status of PSC databases and registries around the world.
Presentation slides available here.
PSC DATABASES/ REGISTRIESPSC DATABASES/ REGISTRIES The PSC Patient Databases Working Group requested that the Forum for Collaborative Research create a registry webpage to highlight the various PSC databases currently available. Overall, the goal of this webpage is to sensitize and inform PSC patients about specific registries that are available for them to join and to encourage researchers to engage in data-sharing through collaboration.
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