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PRIMARY SCLEROSING CHOLANGITIS
PATIENT REGISTRY
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News and Announcements
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Clinical Trials Updated: PLN 74809 and Volixibat
The clinical trials resources page has been updated on 1/27/21 to reflect two clinical trials currently recruiting. PLN 74809:Â Phase 2a...
Jan 28, 2021
Successful registry appeal garners strong support
On October 6, 2020, the PSC Partners Registry team sent out an email alert regarding a Harvard Brigham and Women’s Hospital nutrition...
Nov 13, 2020
Nutrition Study Recruiting Now (US residents)
Check out this video invitation from PSC nutrition study Principal Investigator Dr. Josh Korzenik to participate in a diet and nutrition...
Sep 22, 2020


Ask the PSC Expert - Dr. Gideon Hirschfield
Joanne Hatchett, PSC Partners Medical Science Liaison, sat down for a Zoom interview with Dr. Gideon Hirschfield. Dr. Hirschfield is the...
Aug 21, 2020


Our New Registry Home!
Welcome to Our Upgraded Registry Site! Â We are thrilled to welcome you to our new patient registry home. Our growing family of PSC...
Jul 19, 2020


Expanded Registry Staff
Welcome Sharon Nanz! We are pleased to announce that Sharon Nanz has expanded her role as a member of the PSC Partners staff. Sharon is...
May 4, 2020


COVID-19 and PSC Survey
We are witnessing a surge in COVID-19 registries for liver diseases, but none are PSC-specific. We believe it will be important to...
May 3, 2020


The PSC Partners Patient Registry Origin Story
Little did we know that attending a workshop in Washington D.C. in 2010 would be instrumental in moving PSC Partners towards the...
Apr 30, 2020


Welcome to the PSC Partners Patient Registry!
If you or a loved one has the rare liver disease primary sclerosing cholangitis (PSC), you are in the right place! This site was...
Mar 31, 2020


PatientCrossroads Announcement
PatientCrossroads announces the launch of five new patient registries on behalf of leading rare disease advocacy organizations.
Sep 3, 2014


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