News and Announcements

A new survey on PSC and diet is available through the European Reference Network (ERN) and open to people living with PSC around the...

Issue 7 - Winter 2025 In this issue: From the Registry Director • A New Era • Your Data in Publication - 2024 • Clinical Trial News • Registry Data Presented at TLM • Your Powerful Impact • PSC Partners Registry and Other Registries From the Registry Director Dear Registry Participants, This has been an incredibly fruitful year for the Registry. Between a move to the new and improved Registry platform, several publications making use of Registry data, and the launch of two ne

This past July, the American Liver Foundation (ALF) announced the opening of a new patient registry. You may be wondering how it compares...

PSC Partners opened the Patient Registry for enrollment 10 years ago. However, the process of building a Registry began several years...

In November, a PSC Partners contingent, representing both the U.S. and Canada, attended the 8th PSC Forum and the American Association...