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PRIMARY SCLEROSING CHOLANGITIS
PATIENT REGISTRY
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Two US Clinical Trials from Brigham and Women's Hospital
More participants are needed for the following drug trials to move forward. Please reach out to the Brigham and Women’s researchers...
Apr 8, 2025
Trailblazing WIND-PSC Study is Enrolling Patients and Adding Study Sites
Members of the WIND-PSC project, including the steering committee, staff, and investigators from several of the sites currently enrolling...
Apr 8, 2025


The Symptom Assessment Project: Building New Endpoints for Clinical Trials
Quotes from interviews of patients living with PSC describing their fatigue, presented as a poster at AASLD's The Liver Meeting 2024 ....
Apr 8, 2025


Chemomab Announces Results from Open Label Extension of SPRING Trial for Nebokitug (CM-101) in PSC
Today, March 27, 2025, Chemomab Therapeutics issued a press release announcing results from the Open Label Extension (OLE) section of the SPRING trial, which offered SPRING participants the opportunity to receive nebokitug (CM-101) for an additional 33 weeks (up to 48 weeks of exposure to nebokitug). PSC Partners is encouraged by the positive nebokitug OLE data shared in the press release. Key takeaways from the press release that are important to patients: More than 90% of
Mar 27, 2025


External Survey on PSC and Quality of Healthcare
A new survey outside the Registry that focuses on understanding and improving the care of people living with PSC is now available. Every...
Mar 5, 2025
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