Tutorials & Instructional Videos
Browse the links below for more information on the Patient Registry and how to access and use the Registry!​
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Future tutorials will include:
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how to upload your medical record
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how to see and print or download your survey responses
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how to explore the physician map and add your specialist to the map
Please send a note to registrycoordinator@pscpartners.org for suggestions of tutorials you'd find helpful.
Registry Tutorials
Click on each link below to access a video and/or written tutorial.​
These tutorials contain instructions for creating a new Registry Account. Two account types are available: Patient Accounts, and Caregiver Accounts, which are for users registering on behalf of a living or deceased PSC patient.
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Other Instructional Videos
Launch Video
(2006) 3 min video explaining the need for a Patient Registry
Importance of Patient Registry
(2022) 3 min video on the importance of the Patient Registry. From a ROADMAP webinar.